Spreading Awareness: Road Scholar Transport Honors Neurofibromatosis, Lupus, and Cystic Fibrosis

With a fleet dedicated to several dozen causes and organizations, Road Scholar Transport continues its mission to raise awareness for various health conditions.  This May, we spotlight three significant causes: Neurofibromatosis, Lupus, and Cystic Fibrosis.​

Neurofibromatosis (NF)

Neurofibromatosis is a genetic disorder causing tumors to form on nerve tissue.  It affects approximately 1 in 3,000 individuals, with about 50% of cases resulting from spontaneous mutations. ​NCBI

Types of NF:

  • NF1: The most common form, characterized by skin changes and benign tumors.
  • NF2: Rarer, leading to hearing loss, balance issues, and tumors on the auditory nerves.
  • Schwannomatosis: The rarest type, causing intense pain due to tumors on peripheral nerves.​

In 2019, Road Scholar introduced a Children’s Tumor Foundation truck, featuring the image of President Debra Barrett’s grandson, who was diagnosed with a tumor.  This initiative aims to spread the message: "Imagine the Possibilities."​ 

Lupus

Lupus is a chronic autoimmune disease affecting various parts of the body.  Approximately 1.5 million Americans live with lupus, with 90% being women aged 15-44. ​Lupus Foundation of America

Types of Lupus:

  • Systemic Lupus Erythematosus (SLE): The most common form, impacting multiple organs.
  • Cutaneous Lupus: Affects the skin, causing rashes and lesions.
  • Drug-induced Lupus: Triggered by certain medications, symptoms usually subside after discontinuation.
  • Neonatal Lupus: A rare condition affecting infants of women with lupus.​

In memory of Tanitha Kulsiri, who passed away from SLE at 22, Road Scholar unveiled a Lupus awareness truck in 2013.  The design incorporates Tanitha’s artwork and the message "LIVE BEYOND LUPUS," promoting the Tanitha Kulsiri Memorial Foundation.​

Cystic Fibrosis (CF)

Cystic Fibrosis is a genetic disorder affecting the lungs and digestive system.  In the U.S., approximately 40,000 individuals live with CF, with over 75% diagnosed by age 2. ​verywellhealth.com+4Cystic Fibrosis Foundation+4Lurie Children's+4

Key Facts:

  • Cause: Mutations in the CFTR gene leading to thick mucus buildup.
  • Symptoms: Persistent coughing, frequent lung infections, and difficulty gaining weight.
  • Treatment: While there's no cure, treatments include airway clearance, medications, and nutritional support.​ reuters.com+2health.com+2thesun.ie+2

Inspired by the story of a child who referred to his condition as "65 Roses," Road Scholar designed a CF awareness truck adorned with 65 roses, symbolizing hope and the fight against the disease.​

For more information on Road Scholar’s awareness campaign click here.

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